Showing posts with label polycistic kidney disease. Show all posts
Showing posts with label polycistic kidney disease. Show all posts

Wednesday, July 25, 2012

A Tribute and Prospective from the Wife and Caregiver...


On July 28, I will be celebrating my two year anniversary of God's gift of the ultimate mulligan.

My second chance at life. The two year mark is a major milestone for any transplant survivor. It's a sign that you've made it out of the woods (as long as you take care of your self)

I will be posting a number of amazing and touching "back stories" in celebration. I hope you will join me in celebrating God's story! Be inspired and touched as we journey together. Not just through my life, but through some of the people that made it possible!



Julie Julian & Stephanie Lewis
This is a follow up to Chapter 14  titled  Hanging in there ! My wife Stephanie, was my caregiver and always there for me. This post is for the caregivers and wives out there..  It is also a Tribute to my donor FAMILY. The Julians...


Another Second Chance ...God's Story 
-Page 124

"You'll understand that when you go through extreme moments like this, it's worse for the people looking in.

When I was going through it, I was in the eye of the hurricane. It was almost peaceful. Everything around me was completely chaotic. There were tests and trips, emotional highs and lows, but in the middle  it was both agonizing and peaceful.

My sole focus was on getting well. Stephanie shouldered the burden of what I couldn't do. If you are, or have been a caregiver to someone going through a major illness or disease, your support means more to them than they can ever express to you."


You may have read the book and heard the story. You may know about the "Stranger from a Thousand miles away",  BUT YOU HAVE NOT HEARD IT from his WIFE'S prospective!!

Read below how God was working back then, behind the scenes!!  I WAS BLOWN AWAY!!...

Julie Julian (Donor's Wife) wrote:

The months prior to July 28, 2010 seemed to move at a snail's pace. Life moved along as normally as it had been except for a monthly drive to UC Hospital for another test, evaluation or "sample" delivery. One day in early May, Jay got the call from UCH saying he had been approved...to be an altruistic kidney donor.

There was nothing other than sheer joy in Jay's voice when he told me the news. It was as if he had won the lottery except he wasn't getting a dime. He was willingly and joyfully giving- taking on the risk of death to save the life of a man he did not know. To this day, I am still amazed by my husband's selflessness.

In the hospital on July 28th at 7:00 am, doctor after doctor came by to shake the hand of a man who was a "hero" in their words.

I kissed Jay, told him I loved him and walked to the waiting room. I waited alone for about an hour before our friend Tony came to wait with me. Around 8:45 am, Jay's doctor entered the waiting room to tell me Jay was out of surgery and doing well AND that his kidney looked great and was on the way to Ohio.

At 8:30 pm that night, I left the hospital and drove the short distance to the hotel I was staying at until Jay was discharged. The moment I got into the hotel room I let go and a rush of emotion took over me. Tears came flooding down my face. Jay was okay. I still had my husband to share life with AND now a wife in Ohio had her husband too.

In the days that followed, I was all about taking care of Jay and getting him home. All Jay kept asking about was the recipient. Was he doing okay? Was the kidney working for him? He didn't complain about his own pain or discomfort at all.

Jay has always been a risk taker. He dreams big and speaks honestly. As a result, he has been criticized and judged by those who saw what they wanted to see. Those of us who are not risk takers think that they are "loose cannons" or don't think before they act.

In reality, Jay's "risks" are fueled by a passionate, adventurous spirit that is moved to action while the rest of us sit and wait for a "sign".

Yet after walking through the fire of criticism and getting burned, Jay quietly and courageously listened to the grace filled, loving voice that said, "I know who you are, what you have done for Me and how much you truly love people, so I want you to do something that most people are not strong enough or willing to do."

There is a saying that our true character is revealed when no one is looking.

On July 28, 2010, I believe that the One who was looking knew all along that He needed a risk taking, selfless and brave "maverick" to step up to the plate and demonstrate love and grace in a powerful way. That is the man of character I am privileged to call my husband.

Jay~ thank you for being passionate about life, speaking honestly when others won't and showing me that when you give generously we always have enough.


I was so blessed when I read this the first time! And I have been every time since! I Hope you were as well..

I would be honored, if you would hit the "Follow" button to keep up with the posts. I would also encourage you to "share" it on your facebook pages.


Rom 12:1 Therefore, I urge you, brothers, in view of God’s mercy, to offer your bodies as living sacrifices, holy and pleasing to God—this is your spiritual act of worship.

The walk continues...

Sunday, January 8, 2012

Confirmation at the Book Store II ...God did it again!

1-8-2012 Confirmation at the Book Store II ...God did it again!

A week ago I wrote about an encounter with Phil Dinovo at the Holy Family Book Store. Well! God went and did it again!

Last week I cold called and spoke with a lady named Jane, from "The Bookshelf II". She's the owner of this new & used book store in Fostoria, OH. I called to ask if she would put "Another Second Chance" in her book store.

"Can you give me a little bit of information?" Jane asked.

"About me or the book?" I said laughing since I wasn't sure.

She laughed "Well, lets start with the book". I began to tell her about the book, myself, and why I wrote the book. How God had worked through the whole experience and that I would be doing an interview in a local publication.

"I would love to sell them here! Bring your books in and a flyer that sais "Another Second Chance Sold Here". I will post your flyers in the front window." She said. Jane informed me that "The Bookshelf II" would be open on Saturday and I could drop them off then.

When this Saturday (Jan. 7) rolled around, I found myself winding down Rt. 12 on a beautiful sunny morning. There was a parking spot rite in front of the store with my name all over it! I opened the passengers side door, grabbed my box of books, flyers for Jane, then walked into the store.

There were 2 ladies standing in the front of the store looking at me as I walked in with looks on their faces of "who are you and what do you want". I smiled and chuckled as I asked "Is Jane here?"

"No. She is in Pennsylvania and I am going to pick her up. That is why we are closing early today" The one lady answered nearest to the cash register. It became obvious to me at that point, she was in charge.

"Oh, I didn't know you were closing early today." I said, not being sure what to say from there.

"What did you need?" She asked. I began to explain who I was and that I had spoken with Jane earlier in the week.

She looked over at the other gal and said "Oh, he's that local author she spoke of." She looked back at me "Yeah she told me you might be coming." She told me to put the books on the counter. Then she went on about how busy her schedule was that day.

It appeared that she was the daughter of Jane (I never did catch her name). She told of her upcoming trip to Pennsylvania and all that she had to do to get ready.

She began to talk about her father and the fact that he was at dialysis. Her story went on about her father. He's around 75. She told of how the doctors had written him off, that he had only a certain amount of time to live. The doctors told the family that dialysis wouldn't help him much longer. Then they got a second opinion and took him to a different dialysis center. That was 3 years ago...

I just looked at her as I struggled to get my box of books open. I finally pulled the lid open as she continued. Her dad was at the Fremont Dialysis Center. The same place that I was at for my dialysis treatment. She went on about how great the staff was. She told of a lady that she deals with all the time that she just loves. She told of how her dad has a goal! He wants to see his granddaughter graduate from high school...

The granddaughter is in the 6th grade ...

She paused...

I just stood there looking at her in disbelief, knowing that God had done it again!

I turned to her, my face expressing my amazement, my voice was almost pleading "Do you have any idea what this book is about?..." I asked. She just stood there shaking her head no slowly with a strong look of compassion on her face. Waiting intensely for my reply.

"This is about a kidney transplant..." I said as we paused for just a moment. I could see the look on her face evolving to amazement. "This is a story about a God directed journey that led to a miraculous kidney transplant. My transplant! That saved not just my life, but my brother's too! We were saved by a stranger who stepped forward to give his kidney to someone he believed needed it. He was led by God! That's why it's called "God's Story".

"Oh, my." She said. "So I need to read this and I'm going to need a box of hankies?" she asked.

"I believe you will." I said.

She then reached across the counter, next to the cash register and grabbed a book off of an easel. Then said "Down goes Glenn Beck's book". Then grabbed my book, smiled at me and said "Up goes "Another Second Chance ...God's Story"

I was just beaming with excitement, shaking my head, as she went on about the new book.

As I got ready to leave, I looked back at her and said "You know that lady you told me about at the Fremont Dialysis Center that you just love?"

"Yeah?"

"That's my sister-in-law Debbie..

God used her in a mighty way during my journey. I wrote about it in the book."

I could tell by the look on her face that God had created another fan of his story. The one that is still being written through the lives of people just like YOU.

I walked out of the store into a beautiful January day, blessed.

Knowing that God had done it once again!

 The walk continues...

Wednesday, January 4, 2012

It just hit me... I really wrote a book.

It was Saturday morning on December 31st. New Years Eve! I was feeling a little lazy and trying to get enough ambition to drive around and deliver books to some of the book stores that were going to carry "Another Second Chance". The morning was creeping towards noon when the phone rang.

"Hi Troy, this is Cindy Auxter how are you?" she said with the sweetest voice.

I've known Cindi for a long time, but hadn't spoke with her for years. I was friends with her kids in the small town that we grew up in. (Lindsey, OH) My mind began to race, wondering why she was calling me. Cindi began to explain that her husband had just read an article in the LifeStyle monthly publication that is distributed along the north cost of Lake Erie.

"I didn't know that you had a kidney transplant! How are you doing now?" she asked.

"I'm doing great!" I said in a hurry. I was immediately more interested in where and how her husband got ahold of the January publication in December. I was suppose to have the books in the book stores before the publication came out. Here I was sitting in my lazy boy. For the next few minutes, we began to exchange questions and answers.

Then she asked "Troy, I was wondering if you had any extra books that I could sell here at my store "Thingamajigs?"

"Yes I do" I said with out hesitation. "How many would you like?"

"How about 24? I think I could sell quite a few. I have had 3 people come in this morning asking for them." She said.

"Really?!" I said in disbelief. Her store isn't even a book store and it's not listed in the article. Why would people come in asking for it? I wasn't going to continue questioning, what appeared to be a huge blessing, so I told her "I will be over in a little while".

I got off the phone, showered, and got dressed. Then started running through the house like a crazy man, getting ready! I was throwing books into boxes and boxes into my truck. I looked like someone evacuating for some kind of national emergency. When everything was loaded, I leaped into my truck and fled from my house!

I began to make my rounds to each store on my list. I arrived at Thingamajigs in a flash, carried a box of books in, and set them on the counter. Cindi was so excited for me as I pulled the books out of the box. I showed her the cover.

 "Wow! That must be quite a feeling to hold your own book?" she said as more compliment than question.

I had heard this question a number of times. Each time I heard this, I had a hard time replying to it. It isn't that I am not excited, because I am! It's just that I hadn't had "THAT MOMENT". The one that I have always heard about. You know, you open the box and it's like giving birth to your baby. You hold it for the first time. Your so proud, you want to cry. I hadn't had that...

 I worked so hard to produce this book. Then began a race of labor, campaigning through IndieGoGo to help pay for it. Then the books showed up and I was in a hurry to get them signed, delivered, and mailed to the Contributors of the campaign. Then began a search of book stores that would put them on their shelves. Now I am on a race to deliver them. While doing all this through the Christmas season.

There just hasn't been a moment to smell the roses...

Just as I was saying my goodbyes to Cindi, she said "Oh wait! I have that publication of LifeStyle! Let me give it to you!" So she ran back to get it and brought it back to me. "Here it is Troy. It's a great article!"

 "Thanks Cindi!" And off I went.

I threw the article in the passengers seat and began the half hour drive to J & R Gospel Gift Shop in Sandusky, OH where my next stop was. My mind was racing with all of the things I still needed to do. I glanced over at the stack of boxes, as I hit the last stop light exiting Fremont. I sat waiting patiently. It was as if God said "Son, take a breath."

So I did.

I pulled away and drove for a little while. Listening to nothing but the humming of the tires rolling along Rt. 6. I watched the harvested fields on my right and the marshes on the left . There was very little traffic, it felt like I was the only one on the road. I glanced over and the article caught my eye. I picked it up and began to gaze at it. I had written this 3 weeks ago, but that was the last time I had seen it. It looked different in an actual publication.

I just stared at the bold red heading "Local Author Troy Lewis Book Release and Signing" I started to read the article. One paragraph at a time. Then I made it to the part that said "Miracles still happen and there is always "Another Second Chance". Troy Lewis will be having a book signing at Davinci's Gallery & Coffee House (115 S. Front St., Fremont, OH) on Saturday, January 14th from 10:00am-2:00pm.

I glanced back to the books for a moment, then back to the bold red print at the top of the article.. I just stared at it. 

My eyes began to well up. It was happening. That feeling.

It came over me. Much like winning the championship game, when you didn't stand a chance.

A joy, like that of my daughters being born. A pride, like that of my Father in Heaven telling me "Son, I'm proud of you."

My emotions got the best of me as I cried out "I did it. I really did it. Thank you Lord Jesus." 
God had chose that moment to allow me to realize this feeling of victory. When it was just Him and I. On the last day of 2011.

Thats when it hit me... I really wrote a book.

Praise God that I didn't quit!
The walk continues...

Thursday, December 29, 2011

Another confirmation at the Book Store!


12-29-11 Another confirmation at the Book store!

 A couple of weekends ago, Stephanie and I began to drive around looking for Book Stores that would put "Another Second Chance" on their shelves.

We had been informed that getting your "self published" book onto a book store shelf is not an easy task. Most stores wont even consider it unless you are an established author with a publisher and distributor behind you. Even when you are able to, the fees will drive your profit margin down to a minimal amount.

 So when we entered Holy Family Books & Gifts in Sandusky, OH to ask if they would be interested in putting my new book onto their shelf, I was a little intimidated. We had already been told previously, that this was a Catholic book store and would only accept Catholic books. And since "Another Second Chance" is a memoir or biography, I thought my chances were slim to none...

You could hear the loud bells jingling together as we opened the front door! The peoples heads turning to see who we are. Then that nervous feeling of "what the heck am I doing hear" running through my body.

 "Hi. May I speak to the manager please. Or owner." I said, to the lady standing in front of the counter; Not being sure if she was "that person".

 "He's right there" she said, pointing to a gentlemen who's head was all you could see sitting behind the counter. He was working on his computer.

 He stood up and said "Hi, how can I help you?"

 I stuck out my hand and introduced myself and Stephanie. I put my book onto the counter as I began to stumble and stammer through what was suppose to be my sales pitch. I told him we were from Fremont and what the book was about. As I talked, he just sifted through the book studying various pages. He made it to the pics of when I played Jesus and began to smile.

 "Wow, that looks very real!" he said.

 At this point his assistant began to look at the pics. Her reaction was the same as the owner. She began to ask Stephanie questions about the pictures and the story within the book.

 As their conversation took off and into a different path, I continued to chat with the owner.

 "My name is Phil, by the way." he said. He began to ask a few questions about the story. How I came to need a kidney? Who I received a kidney from? (That one took a while to answer) And how I wrote the book and published it.

 Phil continued to flip the pages, skimming through the chapters. Asking questions about various portions of the book.

 Finally he asked "So what is it that your wanting to do?"

 "Well, we were hoping to have the book for sale on you shelf in hear." I said. Then it felt like the room went silent for a moment. I looked over to Stephanie and back. Phil just continued to look down at the book, still skimming through it.

 Finally the silence was broken. "I don't normally put biographies and memoirs on our shelves. Our books are generally Catholic based. But I believe that this book can speak on many levels. Just from what I have seen so far, I would be willing to put it on my shelf."

 "What do you have in mind?" Phil said.

 I looked over at Stephanie as she began to say "Well we have a lot of cost in the book and can't give you a lot"

 Then Phil jumped in and said "I wasn't going to charge you. I was just going to let you put'em on the shelf! You keep it all."

I just started to laugh as I looked over at Stephanie. She was busy picking her jaw up off of the floor from her previous statement.

 "OK." I said as I continued to chuckle in disbelief and thankfulness. God had come through once again. But He wasn't finished yet...

What Phil said next, left me picking my jaw up off of his counter...

 " You see, I will more than likely be where you are in this book one day. I have polycistic kidney disease. This is a book that is close to my heart already and needs to be shared." Phil said.



I was discouraged to even go to this book store, But God lead the way. He knew even before this book was written, that Phil would be waiting to accept it into his store and into his life. Phil started this Holy book store on faith alone! He was a school teacher 7 years ago or so, and felt lead to start this store. Many told him that he was crazy and it would never succeed. Years later, Phil and the Holy book store are still there, in busy downtown Sandusky. Now, so is "Another Second Chance ...God's Story".

 Thanks to the faith of my new friend Phil...

The walk continues...